I’ve been diagnosed…now what? {#chronicallywell}

If you missed day one or day two, click on the links to catch up on the series. Once you have been given a name for the myriad of symptoms you've been experiencing, it is ok to be relieved.  The road to diagnosis is long and filled with setbacks, disappointments and a whole lot of waiting.  Having an answer to the "what is wrong with me" question is important.  But, moving past the diagnosis is just as important and what we will talk about today. Here are some manageable steps to take control of the illness that has probably been controlling you as you waited for a diagnosis: EDUCATE YOURSELF. Knowledge is power.  And, in this case the internet is your friend.  Make sure you visit reputable sites such as the NIH and official foundations dedicated to research for your specific … [Read more...]

10 Things I’ve learned about living with invisible illness

I have been living with invisible illness {diagnosed} since 2008.  Chronic pain, fatigue and bizarre symptoms are part of my everyday life.  Statistics tell us that 1 out of every 2 Americans lives with a chronic illness {diabetes, lupus, fibromyalgia, rheumatoid arthritis, multiple sclerosis, etc.}   I know I am not alone.  So, why do I often feel that way? 1.  Invisible illness is isolating. Let's face it, people get tired of hearing about your "aches and pains", tired of having you cancel at the last minute because you suddenly feel like you've been hit by a truck, etc.  At least, I think they get tired of it so I withdraw, not wanting to be a bother.  Loneliness is a frequent companion. 2.  Invisible illness is unpredictable. I can go to bed feeling fine and wake up, unable to get … [Read more...]

Invisible Tuesday (on Wednesday)

Tune into MomTV today(Wednesday) at 1pm EST for the latest episode of The Invisibles. Today's show will focus on Optimism and Chronic Illness. Here are some links I mention in the show, in case you weren't able to catch them and the outline of what we will be discussing. The Power of Attitude: American Autoimmune Related Diseases Assoc. Great book: Living Well with Autoimmune Disease How to have a positive attitude: Educate yourself Take care of yourself Manage fatigue Enjoy yourself Maintain healthy relationships Mind over matter Expect bumps (fmaware.org) Stockpile fun distractions (fmaware.org) Find a hobby (helium) Are you an optimist or pessimist quiz?  Lifescript Remember that if you miss the live show, it is available for replay anytime! … [Read more...]

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