You need to have been there…

I was hesitant to write this post because it is about a very polarizing issue.  My opinion (and I acknowledge that is all it is) differs greatly from most of my friends and my readers.  However, my personal experience (which is what I am going to share) is relevant to the issue.  What is the issue, you ask? HEALTH CARE REFORM There I said it.  The three little words that incite anger, misinformation, partisan politics and even hate mail.  I'm taking my chances because I feel strongly that reform is necessary.  Why do I feel strongly enough to expose myself to critical (and that is putting it nicely) comments on my blog, losing readers and tarnishing relationships?  Because of my experiences- all I ask is that you take the time to read my story.  Agree, disagree- but a true dialogue, a true … [Read more...]

Fitness and Invisible Illness

So, if you don't know that this is National Invisible Chronic Illness Awareness week then you have been hiding under a rock (or not reading my blog on a regular basis).  Each day this week (that I have posted) I have been talking about living with chronic illness.  Today, I wanted to talk about fitness and chronic illness- how they work together and how they don't. Most of my loyal readers know that I applied to be the first Mamavation mom.  I didn't win the contest but I did gain the motivation I needed (or kick in the butt as it may be) that I needed to start on my personal weight loss journey.  I have lost 10 lbs. since I made that video in late July!  I am down two pants sizes and my endurance has really increased. Where I am having trouble is this: stagnation.  For the last week … [Read more...]

Invisible Illness Linky Love

I am enjoying this week of awareness for chronic and invisible illnesses.  I am coming across so many awesome bloggers and fellow chronic illness livers (I hate the word sufferer, FYI) that I have added to my blogroll (and some of which I have invited to be on my MomTV show, hmm, mmm.)  So, I shared some of these fabulous peeps on The Invisibles today and some I have mentioned on Twitter.  But, I wanted a spot where all the info was in once place so here you go ;-) Melanie Melanie blogs about her journey and participated in the 30 Things meme as well and I particularly connected with her answer to question #4.  The biggest adjustment is: "adjusting to a very different brain- I can't think, learn or remember like I used to". Couldn't have said it better myself, Melanie. Miss Diagnosis … [Read more...]

You may not know..

30 Things About My Invisible Illness You May Not Know 1. The illness I live with is:  multiple sclerosis 2. I was diagnosed with it in the year: January 2008, on my 29th birthday as a matter of fact 3. But I had symptoms since: 2003 4. The biggest adjustment I’ve had to make is:  not working full-time 5. Most people assume: that I feel better than I do 6. The hardest part about mornings are: waking up to see how I feel and if my day will be able to go as planned 7. My favorite medical TV show is: Grey's Anatomy and I loved ER back in the George Clooney days 8. A gadget I couldn’t live without is: my laptop, my connection to the outside world 9. The hardest part about nights are: having energy to spend time with my kids and hubby 10. Each day I take _6_ pills & vitamins. (No comments, … [Read more...]

What Invisible Illness Looks Like…for me

This week is National Invisible Illness Awareness Week.  Today, I am joining hundreds of other bloggers in raising awareness of the millions of people living with chronic illness, 96% of which have "invisible" symptoms. Rather than try to speak for anyone else, I will simply share what living with an invisible illness looks like for me.  And, I encourage you to visit the headquarters for this week to read about others' experiences. The invisible illness that I live with is multiple sclerosis.  I could try to explain it in technical terms but my favorite explanation comes from Montel Williams, another man living with this disease.  I borrow his explanation often when educating people that don't know much about MS. Montel compares the nerves in our body to electrical cords.  If you look … [Read more...]

Multi-Tasking Mamavation

I am applying to be a 5'4 1/2" 171lb. social experiment.  Given that my undergrad major was psychology, I love social experiments.  The desire to understand human behavior and what motivates change.  So, when Leah from Bookieboo announced on Twitter that she was launching Mamavation I was immediately drawn to the concept: organize a team of experts and cheerleaders to encourage one mom in her fitness journey.  Then, and almost as immediately, I was drawn to the concept that the one mom should could be me.  Why do I want to be the Mamavation mom? My fitness and overall health have been on my mind a lot lately.  I have gained 15 lbs in the last year and almost 40 in the last two and a half.  While I could sit here and make legitimate excuses for this, the fact remains that my doctor has been … [Read more...]

Me, Beautiful?

What makes you feel beautiful, ageless?   B.C. (before children) I felt beautiful when I saw my flat stomach in the mirror, when my chest was, shall we say, perkier?  When my hair was done and make-up applied. Granted, I am only thirty years old, but circumstances make me feel older than that on most days. When I saw this contest and thought about writing this post I had to think about what makes me feel beautiful now.  When you live with chronic illness, feeling beautiful is a rare occurence.  I have bruises on my stomach and hips from my injections, I have gained weight (a fabulous side effect of many medications) and no amount of concealer can masquerade the dark circles under my eyes.  But, thankfully this post gave me pause to reflect on the moments I feel beautiful.  When one of … [Read more...]

Focus Friday- Balance (again)

It is time to get real about what I accomplished last week and what I want/intend to focus on this coming week. You can join in the fun at Thrifty and Chic Mom. Last week I wanted to focus on balancing all the new irons I have in the fire and taking care of my health, etc. I did accomplish making a schedule for work related activities- yeah for me! In fact, I worked all day on Wednesday making a realistic and achievable breakdown of when to work on various projects, allowing for time to nap, go to doctor's appointments, etc. The schedule is great- if I can stick to it.As for achieving the ever elusive balance- I had a wrench (or actually more like a crowbar) thrown in that this week. I fell last week (see my Not Me Monday post for more on that)and instead of going to the doctor when I … [Read more...]

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